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October Phila TRIO meeting: Oct 18th

16 Oct

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Bill Soloway shares how he lives the TRIO mission (TPL video)

2 Oct

TRIO Philadelphia member, Bill Soloway, shared how he is living post heart transplant the TRIO mission of paying it back through personal service in our September chapter meeting.  See it here on YouTube at https://youtu.be/xCjzj7sfd3Q

TRIO Philadelphia athletes show off hearts in action at 2018 Transplant Games

16 Aug

Chas (heart & lung recipient), Bob, John and Bill, all local heart transplant recipient members of TRIO Philadelphia and the 2018 Team Philadelphia, inspired the world with their active lives and recent athletic accomplishments at the Games winning medals in various competitions.  Side note: John is now out more than 25 years with his donated heart!

TRIO Philadelphia’s Bob Goodman inspires in SNJ article

16 Aug

“I did two cycling events on Friday, I did three swimming events on Saturday, and I followed it up with some track and field events on Sunday as well. It was pretty darn incredible, and I will do it again,” said Goodman of Westampton.

Click on this article link to see Bob’s amazing post heart transplant story: http://www.snjtoday.com/story/38884601/south-jersey-man-competes-in-transplant-games

Discussion topic for May 24th meeting: traits inherited in transplanted organs

21 May

Come join us for an interesting evening with this controversial topic . . .

Transplant Games of America coming to NJ Meadowlands in 2020

3 Mar

After you attend the 2018 Games in Salt Lake City (last SLC Games were held in 1996 and I was there!  My first Games and they were GREAT!) start planning for the 2020 Games just announced as being held in New Jersey!!!  More to come in the months ahead …  Stay Tuned!

PS: See you in SLC this August – look up our TRIO table and say hello!

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Feb 21st meeting speaker – video on-line!

1 Mar

Our recent meeting and speaker was recorded and is now available as one of the 100 TRIO Transplant Library programs available for viewing on YouTube at https://youtu.be/CXtGL8TZj5U

Qualifying For Disability Benefits After an Organ Transplant

30 Nov

If you or a loved one has recently had an organ transplant procedure, or is on the wait list for an organ transplant, you will almost always qualify for Social Security disability benefits. The Social Security Administration (SSA) offers financial resources for people with serious illnesses that prevent them from working for one year or more. An organ transplant always medically qualifies, and you might also qualify while you are awaiting your donor.

Qualifying After a Transplant

The SSA maintains its own list of qualifying conditions, known as the Blue Book. For most illnesses or disabilities, the Blue Book has descriptions of test results or symptoms needed to qualify. Organ transplants are much more straightforward—If you have a transplant surgery, you will qualify for at least 12 months after the procedure. A lung transplant will qualify for a full three years after surgery. If you are the recipient of a bone marrow or stem cell donation, you will also qualify for benefits for 12 months.

It’s important to keep in mind that only organ donor recipients are eligible for disability benefits. Live donors typically recover in a matter of weeks or months depending on the donation, so they will not meet the SSA’s basic definition of disability.

Qualifying Before a Transplant

If you are eligible for an organ transplant, it’s more than likely that you’ll have a condition that is severe enough to meet a Blue Book listing. Some conditions that could qualify include, but are not limited to:

Listings for organ failure in particular are highly complex and are best read by a medical professional. Your doctor can help determine if you qualify for disability benefits via the Blue Book, but again, if you are on the wait list for a transplant you shouldn’t have any difficulty qualifying.

Medical Care and Disability Benefits

Most Social Security recipients also receive Medicare. Unfortunately, there is almost always a 24-month waiting period for Medicare. This means that you will not be eligible for health insurance for a full two years after your condition became severe enough to qualify for disability benefits.

If you’re currently working and receiving health insurance from your employer, you may want to evaluate your options before applying. It might be very expensive to qualify for disability benefits if you do not have health insurance through a spouse.

There is one exception to this 24-month wait period—End Stage Renal Disease. If you have ESRD and are waiting for a kidney transplant, you will automatically be enrolled onto Medicare as soon as your Social Security disability application is approved.

Starting Your Application

Most people can file for Social Security disability benefits online on the SSA’s website. This is one of the fastest ways to apply, and someone can apply on your behalf if you’re too ill to use a computer. You can also apply at your local Social Security office. To schedule an appointment to apply in person, call the SSA toll free at 1-800-772-1213.

Most claims will be approved in a couple of months. Once you’re receiving benefits, you can spend the additional income on your health costs or transportation bills, living arrangements for your family after surgery, childcare, and any other daily living needs.

We offer special thanks for this article written for TRIO by:
Eric Minghella
Outreach Specialist
Disability Benefits Help

Note: to download a PDF version of this article,click here: Trio Philadelphia Chapter final SSA article

TRIO Phila Home Cook Heroes

13 Jul

Sue Kelchner & grandchild 1090551_1_resized 1090556_1_resized 1090558_1_resized 1090561_1_resized 1090563_2_resized